Living with Epidermolysis Bullosa
Billy lives with Epidermolysis Bullosa (EB), a rare genetic skin disease. It is characterised by extremely fragile and blister prone skin. Apart from searching for a cure, the biggest challenge for families living with EB is the cost of wound care.
Billy and his family are recipients of subsidised wound care products through the National Epidermolysis Bullosa Dressings Scheme (NEBDS).
Not only does the NEBDS ease the financial burden of living with EB, the Scheme provides staff and educational resources for teachers and students, to help people like Billy live their life to the absolute fullest! This is Billy’s story.
You can read more about how the NEBDS helps people living with EB.
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